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Find out how orphan diseases impact people's lives through the words of doctors, family members, and the patients themselves.
What is an Orphan disease and why should I care?
An orphan disease is a rare disease affecting less than .05% of the population, typically genetic in origin and either life-threatening or chronically debilitating.
Because of their rarity, orphan diseases are often overlooked for funding and public support.
HOW CAN I HELP?
We are currently working with organizations dedicated to finding cures for a variety of orphan diseases, including Chordoma, Progeria, and Rett Syndrome. Everytime you donate or buy a game, you help provide funding for research on these overlooked diseases.
Where can I learn more?
To learn more about these diseases and the groups seeking to cure them, visit their websites:
Rare Disease Day www.rarediseaseday.org
NORD www.rarediseases.org
An orphan disease is a rare disease affecting less than .05% of the population, typically genetic in origin and either life-threatening or chronically debilitating.
Because of their rarity, orphan diseases are often overlooked for funding and public support.
HOW CAN I HELP?
We are currently working with organizations dedicated to finding cures for a variety of orphan diseases, including Chordoma, Progeria, and Rett Syndrome. Everytime you donate or buy a game, you help provide funding for research on these overlooked diseases.
Where can I learn more?
To learn more about these diseases and the groups seeking to cure them, visit their websites:
Rare Disease Day www.rarediseaseday.org
NORD www.rarediseases.org